(210 ILCS 60/1) (from Ch. 111 1/2, par. 6101)
Sec. 1. This Act may be
cited as the Hospice Program Licensing Act.
(Source: P.A. 86-1475.)
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(210 ILCS 60/2) (from Ch. 111 1/2, par. 6102)
Sec. 2. Purpose. The intent
of this Act is to ensure quality hospice care to consumers in
the State of Illinois. This is to be accomplished through the development, establishment
and enforcement of standards governing the care provided by hospice
programs.
(Source: P.A. 94-570, eff. 8-12-05.)
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(210 ILCS 60/3) (from Ch. 111 1/2, par. 6103)
Sec. 3. Definitions. As
used in this Act, unless the context otherwise requires:
(a) "Bereavement" means
the period of time during which the hospice patient's family
experiences and adjusts to the death of the hospice patient.
(a-5) "Bereavement
services" means counseling services provided to an individual's
family after the individual's death.
(a-10) "Attending
physician" means a physician who:
(1)
is a doctor of medicine or osteopathy; and
(2)
is identified by an individual, at the time the
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individual elects to receive hospice
care, as having the most significant role
in the determination and delivery of the
individual's medical care.
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(b) "Department" means
the Illinois Department of Public Health.
(c) "Director" means
the Director of the Illinois Department of Public Health.
(d) "Hospice care" means
a program of palliative care that provides for the
physical, emotional, and spiritual care needs of a
terminally ill patient and his or her family. The goal
of such care is to achieve the highest quality of life
as defined by the patient and his or her family through
the relief of suffering and control of symptoms.
(e) "Hospice care team" means
an interdisciplinary group or groups composed of individuals who
provide or supervise the care and services offered by the hospice.
(f) "Hospice patient" means
a terminally ill person receiving hospice services.
(g) "Hospice patient's
family" means a hospice patient's immediate family consisting
of a spouse, sibling, child, parent and those individuals designated
as such by the patient for the purposes of this Act.
(g-1) "Hospice
residence" means a separately licensed home, apartment building,
or similar building providing living quarters:
(1)
that is owned or operated by a person licensed
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to operate as a comprehensive hospice;
and
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(2)
at which hospice services are provided to
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A building that
is licensed under the Hospital Licensing Act or the
Nursing Home Care Act is not a hospice residence.
(h) "Hospice services" means
a range of professional and other supportive services provided
to a hospice patient and his or her family. These services may
include, but are not limited to, physician services, nursing services,
medical social work services, spiritual counseling services, bereavement
services, and volunteer services.
(h-5) "Hospice
program" means a licensed public agency or private organization,
or a subdivision of either of those, that is primarily engaged
in providing care to terminally ill individuals through a program
of home care or inpatient care, or both home care and inpatient
care, utilizing a medically directed interdisciplinary hospice
care team of professionals or volunteers, or both professionals
and volunteers. A hospice program may be licensed as a comprehensive
hospice program or a volunteer hospice program.
(h-10) "Comprehensive
hospice" means a program that provides hospice services and
meets the minimum standards for certification under the Medicare
program set forth in the Conditions of Participation in 42 CFR
Part 418 but is not required to be Medicare-certified.
(i) "Palliative care" means
the management of pain and other distressing symptoms that incorporates
medical, nursing, psychosocial, and spiritual care according to
the needs, values, beliefs, and culture or cultures of the patient
and his or her family. The evaluation and treatment is patient-centered,
with a focus on the central role of the family unit in decision-making.
(j) "Hospice service
plan" means a plan detailing the specific hospice services
offered by a comprehensive or volunteer hospice program, and the
administrative and direct care personnel responsible for those
services. The plan shall include but not be limited to:
(1)
Identification of the person or persons
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administratively responsible for the
program.
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(2)
The estimated average monthly patient census.
(3)
The proposed geographic area the hospice will
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(4)
A listing of those hospice services provided
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directly by the hospice, and those
hospice services provided indirectly through
a contractual agreement.
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(5)
The name and qualifications of those persons or
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entities under contract to provide
indirect hospice services.
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(6)
The name and qualifications of those persons
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providing direct hospice services,
with the exception of volunteers.
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(7)
A description of how the hospice plans to
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utilize volunteers in the provision
of hospice services.
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(8)
A description of the program's record keeping
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(k) "Terminally
ill" means a medical prognosis by a physician
licensed to practice medicine in all of its branches
that a patient has an anticipated life expectancy
of one year or less.
(l) "Volunteer" means
a person who offers his or her services to a hospice without compensation.
Reimbursement for a volunteer's expenses in providing hospice service
shall not be considered compensation.
(l-5) "Employee" means
a paid or unpaid member of the staff of a hospice program, or,
if the hospice program is a subdivision of an agency or organization,
of the agency or organization, who is appropriately trained and
assigned to the hospice program. "Employee" also means
a volunteer whose duties are prescribed by the hospice program
and whose performance of those duties is supervised by the hospice
program.
(l-10) "Representative" means
an individual who has been authorized under State law to terminate
an individual's medical care or to elect or revoke the election
of hospice care on behalf of a terminally ill individual who is
mentally or physically incapacitated.
(m) "Volunteer hospice" means
a program which provides hospice services to patients regardless
of their ability to pay, with emphasis on the utilization of volunteers
to provide services, under the administration of a not-for-profit
agency. This definition does not prohibit the employment of staff.
(Source: P.A. 93-319, eff. 7-23-03;
94-570, eff. 8-12-05.)
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(210 ILCS 60/4) (from Ch. 111 1/2, par. 6104)
Sec. 4. License.
(a) No person shall establish,
conduct or maintain a comprehensive or volunteer hospice program
without first obtaining a license from the Department. A hospice
residence may be operated only at the locations listed on the
license. A comprehensive hospice program owning or operating
a hospice residence is not subject to the provisions of the Nursing
Home Care Act in owning or operating a hospice residence.
(b) No public or private
agency shall advertise or present itself to the public as a comprehensive
or volunteer hospice program which provides hospice services
without meeting the provisions of subsection (a).
(c) The license shall be
valid only in the possession of the hospice to which it was originally
issued and shall not be transferred or assigned to any other
person, agency, or corporation.
(d) The license shall be
renewed annually.
(e) The license shall be
displayed in a conspicuous place inside the hospice program office.
(Source: P.A. 93-319, eff. 7-23-03;
94-570, eff. 8-12-05.)
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(210 ILCS 60/4.5)
Sec. 4.5. Provisional license.
Every licensed hospice program in operation on the effective
date of this Act that does not meet all of the requirements for
a comprehensive hospice program or a volunteer hospice program
as set forth in this Act shall be deemed to hold a provisional
license to continue that operation on and after that date. The
provisional license shall remain in effect for one year after
the effective date of this Act or until the Department issues
a regular license under Section 4, whichever is earlier. The
Department may coordinate the issuance of a regular hospice program
license under Section 4 with the renewal date of the license
that is in effect on the effective date of this Act.
(Source: P.A. 94-570, eff. 8-12-05.)
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(210 ILCS 60/5) (from Ch. 111 1/2, par. 6105)
Sec. 5. Application for
License. An application for license or renewal thereof to operate
as a comprehensive or volunteer hospice program shall be made
to the Department upon forms provided by it, and shall contain
information reasonably required by the Department, taking into
consideration the different categories of hospice programs. The
application shall be accompanied by:
(1)
The hospice service plan;
(2)
A financial statement containing information
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deemed appropriate by the Department
for the category of the applicant; and
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(3)
A uniform license fee determined by the
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Department based on the hospice program's
category.
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A licensed comprehensive
hospice or volunteer hospice that is in operation
on the effective date of this Act may be issued a
comprehensive hospice program license under Section
4 if the hospice program meets the requirements for
a comprehensive hospice program set forth in this
Act.
(Source: P.A. 94-570, eff. 8-12-05.)
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(210 ILCS 60/6) (from Ch. 111 1/2, par. 6106)
Sec. 6. Inspections.
(a) Prior to the issuance
of a license, or renewal thereof, the Department may inspect
the hospice program for compliance with the standards established
pursuant to this Act.
(b) To the maximum extent
possible, the Department shall coordinate inspections made under
this Act with those made for the purpose of determining compliance
with other licensing Acts.
(Source: P.A. 87-860.)
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(210 ILCS 60/7) (from Ch. 111 1/2, par. 6107)
Sec. 7. Issuance of License -Renewal.
Upon receipt of a completed application for license or renewal
the Department shall issue a license if:
(1)
The Department finds that the applicant is in
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compliance with this Act and the minimum
standards established pursuant to this Act;
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(2)
The applicant submits to the Department an
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acceptable plan for the correction
of deficiencies discovered by the Department
during an inspection performed pursuant to
Section 6 or through other information provided
to the Department regarding possible deficiencies;
and
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(3)
The affiliated agency has maintained compliance
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with the standards established pursuant
to its applicable licensing Act, if any.
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The Department
shall establish, by rule, the standards it uses to
determine whether a plan for correcting deficiencies
is acceptable.
(Source: P.A. 87-860.)
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(210 ILCS 60/8) (from Ch. 111 1/2, par. 6108)
Sec. 8. General Requirements
for hospice programs. Every hospice program shall comply with
the following requirements:
(a) The hospice program's
services shall include nursing services, medical social work
services, bereavement services, and volunteer services. These
services shall be coordinated with those of the hospice patient's
attending physician and shall be substantially provided by hospice
program employees. The hospice program must make nursing services,
medical social work services, volunteer services, and bereavement
services available on a 24-hour basis to the extent necessary
to meet the needs of individuals for care that is reasonable
and necessary for the palliation and management of terminal illness
and related conditions. The hospice program must provide these
services in a manner consistent with the standards for certification
under the Medicare program set forth in the Conditions of Participation
in 42 CFR Part 418. Hospice services, as defined in Section 3,
may be furnished in a home or inpatient setting, with the intent
of minimizing the length of inpatient care. The home care component
shall be the primary form of care and shall be available on a
part-time, intermittent, regularly-scheduled basis.
(a-5) The hospice
program must have a governing body that designates an individual
responsible for the day-to-day management of the
hospice service plan. The governing body must also ensure that
all services are provided in accordance with accepted standards
of practice and shall assume full legal responsibility for determining,
implementing, and maintaining the hospice program's total operation.
(a-10) The hospice
program must fully disclose in writing to any hospice patient,
or to any hospice patient's family or representative, prior to
the patient's admission, the hospice services available from
the hospice program and the hospice services for which the hospice
patient may be eligible under the patient's third-party
payer plan (that is, Medicare, Medicaid, the Veterans Administration,
private insurance, or other plans).
(b) The hospice program
shall coordinate its services with professional and nonprofessional
services already in the community. The program may contract out
for elements of its services; however, direct patient contact
and overall coordination of hospice services shall be maintained
by the hospice care team. Any contract entered into between a
hospice and a health care facility or service provider shall
specify that the hospice retain the responsibility for planning
and coordinating hospice services and care on behalf of a hospice
patient and his family. All contracts shall be in compliance
with this Act. No hospice which contracts for any hospice service
shall charge fees for services provided directly by the hospice
care team which duplicate contractual services provided to the
individual patient or his family.
(c) The hospice program
must have functioning hospice care teams that develop the hospice
patient plans of care in accordance with the standards for certification
under the Medicare program set forth in the Conditions of Participation
in 42 CFR Part 418.
(c-5) A hospice patient's
plan of care must be established and maintained for each individual
admitted to a hospice program, and the services provided to an
individual must be in accordance with the individual's plan of
care. The plans of care must be established and maintained in
accordance with the standards for certification under the Medicare
program set forth in the Conditions of Participation in 42 CFR
Part 418.
(d) The hospice program
shall have a medical director who shall be a doctor of medicine
or osteopathy and licensed to practice medicine in all of its
branches. The medical director shall have overall responsibility
for medical direction of the patient care component of the hospice
program and shall consult and cooperate with the patient's attending
physician.
(e) The hospice program
shall have a bereavement program which shall provide a continuum
of supportive services for the family after the patient's death.
The bereavement services must be provided in accordance with
the standards for certification under the Medicare program set
forth in the Conditions of Participation in 42 CFR Part 418.
(f) The hospice program
shall foster independence of the patient and his family by providing
training, encouragement and support so that the patient and family
can care for themselves as much as possible.
(g) The hospice program
shall not impose the dictates of any value or belief system on
its patients and their families.
(h) The hospice program
shall clearly define its admission criteria. Decisions on admissions
shall be made by a hospice care team and shall be dependent upon
the expressed request and informed consent of the patient or
the patient's legal guardian. For purposes of this Act, "informed
consent" means that a hospice program must demonstrate respect
for an individual's rights by ensuring that an informed consent
form that specifies the type of care and services that may be
provided as hospice care during the course of the patient's illness
has been obtained for every hospice patient, either from the
patient or from the patient's representative.
(i) The hospice program
shall keep accurate, current, and confidential records on all
hospice patients and their families in accordance with the standards
for certification under the Medicare program set forth in the
Conditions of Participation in 42 CFR Part 418, except that standards
or conditions in connection with Medicare or Medicaid election
forms do not apply to patients receiving hospice care at no charge.
(j) The hospice program
shall utilize the services of trained volunteers in accordance
with the standards for certification under the Medicare program
set forth in the Conditions of Participation in 42 CFR Part 418.
(k) (Blank).
(l) The hospice program
must maintain professional management responsibility for hospice
care and ensure that services are furnished in a safe and effective
manner by persons meeting the qualifications as defined in this
Act and in accordance with the patient's plan of care.
(m) The hospice program
must conduct a quality assurance program in accordance with the
standards for certification under the Medicare program set forth
in the Conditions of Participation in 42 CFR Part 418.
(n) Where applicable, every
hospice program employee must be licensed, certified, or registered
in accordance with federal, State, and local laws and regulations.
(o) The hospice program
shall provide an ongoing program for the training and education
of its employees appropriate to their responsibilities.
(Source: P.A. 94-570, eff. 8-12-05.)
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(210 ILCS 60/8.5)
Sec. 8.5. Additional requirements;
comprehensive hospice program. In addition to complying with
the standards prescribed by the Department under Section 9 and
complying with all other applicable requirements under this Act,
a comprehensive hospice program must meet the minimum standards
for certification under the Medicare program set forth in the
Conditions of Participation in 42 CFR Part 418.
(Source: P.A. 94-570, eff. 8-12-05.)
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(210 ILCS 60/8.10)
Sec. 8.10. Additional requirements;
volunteer hospice program. In addition to complying with the
standards prescribed by the Department under Section 9 and complying
with all other applicable requirements under this Act, a volunteer
hospice program must do the following:
(1)
Provide hospice care to patients regardless of
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their ability to pay, with emphasis
on the utilization of volunteers to provide
services. Nothing in this paragraph prohibits
a volunteer hospice program from employing
paid staff, however.
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(2)
Provide services not required under subsection
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(a) of Section 8 in accordance with
generally accepted standards of practice
and in accordance with applicable local,
State, and federal laws.
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(3)
Include the word "Volunteer" in its corporate
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name and in all verbal and written
communications to patients, patients' families
and representatives, and the community and
public at large.
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(4)
Provide information regarding other hospice care
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providers available in the hospice
program's service area.
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(Source: P.A. 94-570, eff. 8-12-05.)
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(210 ILCS 60/9) (from Ch. 111 1/2, par. 6109)
Sec. 9. Standards. The Department
shall prescribe, by regulation, minimum standards for licensed
hospice programs.
(a) The standards for all
hospice programs shall include, but not be limited to, the following:
(1)
(Blank).
(2)
The number and qualifications of persons
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providing direct hospice services.
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(3)
The qualifications of those persons contracted
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with to provide indirect hospice services.
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(4)
The palliative and supportive care and
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bereavement counseling provided to
a hospice patient and his family.
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(5)
Hospice services provided on an inpatient basis.
(6)
Utilization review of patient care.
(7)
The quality of care provided to patients.
(8)
Procedures for the accurate and centralized
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maintenance of records on hospice
services provided to patients and their families.
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(9)
The use of volunteers in the hospice program,
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and the training of those volunteers.
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(10)
The rights of the patient and the patient's
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(b) (Blank).
(c) The standards for hospices
owning or operating hospice residences shall address
the following:
(1)
The safety, cleanliness, and general adequacy of
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the premises, including provision
for maintenance of fire and health standards
that conform to State laws and municipal
codes, to provide for the physical comfort,
well-being, care, and protection of
the residents.
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